The Dorsal Root

CMT at Your Fingertips

“Close-up of a human hand reaching toward a glowing DNA double helix with connected nerve structures in the background, symbolizing the link between genetics and peripheral nerve function. A holographic outline of a lower leg and foot appears in the distance, representing Charcot-Marie-Tooth disease research.”

Nerves talk. We listen. CMT’s within reach.

The Dorsal Root offers unique perspectives on CMT’s science and the people behind it. Informed, clear, and always within reach.

RESET
CLEAR
Black and white close-up of a person’s face partially wrapped in clear plastic film, with a hand pulling the plastic away.

Just Breathe

April 10, 2020
CMT was never supposed to be life-altering. Then my breathing changed. This is the story of neuromuscular respiratory failure, explaining why the lungs can be healthy while breathing still fails, and what that reality feels like.
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Two people reviewing a folded road map outdoors, pointing at a route while planning a trip.

When Words Escape

April 6, 2020
After two decades of unexplained voice and throat issues, I finally got a clear answer: my symptoms are connected to CMT, but not in the way anyone assumed. This is the story of how fatigue, hoarseness, and speech changes led to a root-cause explanation, and what it can mean for others dealing with the same confusion.
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